What is Sjögren’s syndrome?

Written in association with: Dr Joel David
Published: | Updated: 05/09/2023
Edited by: Lisa Heffernan

Sjögren’s syndrome (pronounced Show-grins) is a condition that affects the parts of the body that produce fluids like tears and saliva. Usually, people most affected are those aged between 40-60 years old and women. The condition may occur in association with other autoimmune diseases such as lupus, rheumatoid arthritis or myositis and lung disease.

Rheumatologist Dr Joel David talks about the symptoms of sjögren’s syndrome and how it can be treated.

 

What are the symptoms of sjögren’s syndrome?

Symptoms affecting the eyes:

  • Dry eyes
  • Burning, stinging or itchy eyes
  • A feeling of grit or sand in your eyes
  • Sore, red and swollen eyelids
  • Discomfort when looking at lights
  • Sticky eyelids when you wake up

 

Symptoms sometimes worsen with dry air, windy and smoky environments. Air conditioning and medications such as amitriptyline can also aggravate the eyes further.

Oral symptoms:

  • Dry mouth
  • Difficulty swallowing and eating dry foods
  • Experiencing a change in how food tastes
  • A smooth, red tongue that sticks to the roof of your mouth
  • Hoarseness
  • Dry, cracked skin around the corners of your lips
  • Dental decay and oral thrush

 

Other symptoms:

  • Itchy, dry skin and skin rashes after being out in the sun
  • Swelling between the jaw and ears and swollen salivary glands
  • Exhaustion
  • Vaginal dryness in women, which can make sex painful
  • A dry cough
  • Muscle pain and joint stiffness
  • Difficulty with memory and concentration

 

How is sjögren’s syndrome treated?

If the condition is affecting your eyes, it is advised to:

1. Avoid dry, smoky and windy places. A humidifier at home or at the office can help to keep the air moist

2. Avoid reading or looking at screens for long periods of time

3. Wear protective, wraparound sunglasses that avoid wind and smoke from getting to the eyes

4. Practise good eyelid hygiene, regularly cleaning your eyelids, removing any makeup

5. Visit the optician regularly and avoid any medication where dry eyes is a side effect

Artificial tears and ointments can be purchased over-the-counter to lubricate the eyes. Talk to your doctor to find out what treatment works best for you. Note that if you’re using eye drops more than three times a day, avoid eye drops that contain preservatives to avoid further eye damage.

Sometimes a type of medication called pilocarpine may be prescribed to help your body produce more natural tears or a procedure may be carried out to block the tear ducts to prevent tears from draining away.

 

Treating a dry mouth

1. Practice good oral hygiene and brush your teeth twice a day with fluoride toothpaste

2. Rinse your mouth with mouthwash after brushing

3. Chew sugar-free gum to activate the salivary glands

4. Keep hydrated with plenty of water

5. Use lip balm to soothe cracked and sore lips

6. Visit your dentist every six months

7. Avoid alcohol and smoking as much as possible

 

Saliva substitutes can be bought from the pharmacy to keep the mouth moist and can be found in spray, tablet and gel form.

 

Treating other symptoms

Dry skin can be managed by moisturising every day and avoiding any strong, perfumed soaps and lotions.

Vaginal dryness can be treated with lubricants if sexual intercourse is painful. Certain creams can prevent vaginal dryness and hormone treatments such as oestrogen medication or hormone replacement therapy can be used. If joint pain and stiffness are experienced, hydroxychloroquine is sometimes recommended.

 

If you are experiencing any of the symptoms mentioned above and would like more information regarding treatment, you can book an appointment with Dr Joel David via his profile.

By Dr Joel David
Rheumatology

Dr Joel David is a distinguished senior consultant rheumatologist based in Oxford. He specialises in treating rheumatoid, psoriatic, and juvenile arthritis and is also renowned for his expertise in ankylosing spondylitis, lupus and gout, among other conditions. He sees private patients at his own practice, Joel David Rheumatology.

Dr David qualified in medicine from University of the Witwatersrand, South Africa in 1981. After an internship in Johannesburg, he relocated to London to take up a general medicine position at the Royal Free Hospital before undertaking postgraduate training in rheumatology at the Royal Postgraduate Medical School, Hammersmith Hospital. He was appointed as a member of the Royal College of Physicians (MRCP) in 1984 and later a fellow in 1996 (FRCP). He undertook senior registrar positions at Charing Cross, Northwick Park and Great Ormond Street Hospitals and was appointed as a consultant rheumatologist in 1992 at the Royal Berkshire Hospitals NHS Trust in Reading. He currently holds the position of senior consultant rheumatologist and clinical lead at Nuffield Orthopaedic Centre and sees private patients at his own practice in Oxford.

Dr David is a leading name in the field of rheumatology and was responsible for setting up OxPARC (Oxford Paediatric and Adolescent Rheumatology Centre) and oxsport@noc, a state-of-the-art sport and exercise medicine department in Oxfordshire. He worked in conjunction with experts in the fields of ophthalmology and endocrinology to set up a national referral centre for autoimmune thyroid eye disease and also helps run multi-disciplinary joint clinics in complex auto-immune disease, collaborating closely with specialists in haematology, immunology and respiratory medicine.

Dr David has held a number of senior positions throughout his career and currently serves as regional specialty advisor for rheumatology and rheumatology governance lead for the Oxford region and is a former clinical director and clinical lead in medicine. His extensive academic publications are published in peer-reviewed journals and he also plays a key role in education for medical trainees, being a senior lecturer at University of Oxford Medical School and an examiner for the Royal College of Physicians.

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