Navigating PoTS: Insights and strategies

Written in association with: Dr Pramod Nair
Published:
Edited by: Kate Forristal

Postural Orthostatic Tachycardia Syndrome (PoTS) is a condition where the heart rate increases abnormally upon standing. It's a challenge for those affected, causing symptoms like palpitations, dizziness, fatigue, and cognitive issues. Simple tasks like standing in line become difficult as the body struggles to regulate blood flow and pressure. In his latest online article, Dr Pramod Nair gives us his insights.

How is PoTS diagnosed, and what obstacles do people face in getting a diagnosis?

Getting diagnosed with PoTS can be tough. Many undergo a long and frustrating journey, seeing various specialists before figuring out what's wrong. PoTS often gets mistaken for other conditions, delaying proper diagnosis. Symptoms can be vague and overlap with other health issues, making it hard for doctors to recognise PoTS right away.

 

What strategies help manage PoTS day-to-day, and how do they improve quality of life?

Managing PoTS involves lifestyle changes, medication, and understanding one's body. Things like monitoring fluid intake, wearing compression stockings, and engaging in regular exercise (under the guidance of a healthcare professional) can help improve symptoms. Some people also find relief from dietary changes, like increasing salt and water intake. Learning to pace activities and avoid triggers that worsen symptoms is crucial for managing PoTS effectively.

 

What are the emotional impacts of PoTS, and how can people cope with them?

Living with PoTS can take a toll on mental health. It's an invisible illness, so others may not understand the challenges it brings. Coping with symptoms can lead to feelings of isolation and frustration. Anxiety and depression are common among those with PoTS, as they navigate the uncertainties and limitations imposed by the condition. Seeking support from friends, family, or mental health professionals can help individuals cope with the emotional impact of PoTS. Finding ways to stay connected with others and engaging in activities that bring joy and fulfilment can also improve overall well-being.

 

How do online communities support individuals with PoTS, and why are they important?

Online support groups play a vital role in helping people with PoTS feel less alone. They provide a space for sharing experiences and advice, offering emotional support that's hard to find elsewhere. Connecting with others who understand what it's like to live with PoTS can validate one's experiences and provide practical tips for managing symptoms. Online communities also empower individuals to advocate for themselves and raise awareness about PoTS within their communities.

 

What recent advancements in medical research offer hope for managing PoTS in the future?

Medical research is making progress in understanding and treating PoTS. Researchers are investigating the underlying mechanisms of the condition, which may lead to more targeted treatments in the future. New medications and therapies are being explored to help alleviate symptoms and improve quality of life for those with PoTS. Additionally, advances in technology, such as wearable devices for monitoring heart rate and blood pressure, may aid in the early detection and management of PoTS.

 

Dr Pramod Nair is an esteemed paediatrician. You can schedule an appointment with Dr Nair on his Top Doctors profile.

By Dr Pramod Nair
Paediatrics

Dr Pramod Nair is a highly sought after paediatrician based in Milton Keynes and Bedford. He is an experienced clinician with a wide range of experience in all areas of general paediatrics. He has a special interest in paediatric cardiology, syncope and PoTS. He also has wide ranging experience in paediatric haematology & oncology, developmental paediatrics, allergies, intensive care and  management of gastro intestinal problems, headaches, hemangiomas, growth related disorders, feeding problems, chronic fatigue syndrome etc. After completing his post graduation in Paediatrics from Mumbai University in India, he obtained higher specialist training from East Midlands deanery in Nottingham. He has over 20 years of experience in Paediatrics and is well liked by his patients and parents.

He is the Clinical lead for children's services at Bedford Hospital NHS Trust, Clinical Lead for Paediatric Cardiology & Paediatric Resuscitation services at the same trust, Paediatric Lead at the BMI Saxon Clinic and holds honorary post at the Great Ormond Street Hospital.

Dr Nair is well loved by his patients and he strives to provide the best and evidence based clinical care efficiently. His aim is to provide fast, efficient and family friendly services that ensures a faster diagnosis and care to his patients. He is well connected to other reputed sub specialists to whom he would refer if necessary.

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